Wow, it has been a very long time since I have written in my blog. As I look back at my last post I think of all the things that have happened since then. It's kind of ironic, that what was bad then, seems like nothing now. I really had high hopes that 2010 was going to be a way better year then 2009. It is funny to think that every new year, I seem to think the same way, and then for some reason or another, it doesn't go my way. I am sitting here wondering if it is the same for everyone, or just my dumb luck.
I will rewind a bit and explain what all has gone on in the last 8 weeks. My last exacerbation started in October of 2009. I held out til November before giving in and having the I.V. steroid treatment. We all know how much I hate them. Anyways, in the very beginning of January I had to do another course of steroids. This time I chose to try the oral just because I didn't want to go through all the side effects. It seemed to have worked. I am not falling nor is my vision blurry. So, even though it did take two courses of treatment, it did get me back on track. The only symptoms I have really been fighting is the fatigue and muscle spasms. About the same time I was going through this, my son who is 14, started complaining of severe head pain and dizziness. We had taken him to the doctor's and was told to wait it out for awhile, to see if it improved. Three weeks later we ended up in the Emergency room, where they treated him with a cocktail of drugs and determined that it had been a migraine. He was fine that night with the dizziness returning the next day. We were sent to a Neurologist who ruled out any brain issues. He was not allowed to continue Wrestling though. Later we went back to the Doctor's to find that the dizziness has something to do with his pulse and blood pressure. Apparently, the more vertical he is, the heart is not able to push the blood to the brain as fast and this is causing his dizziness. We go see the Cardiologist this Wednesday. Also in January, My husband's Grandfather "Papa" passed away. Papa lived about 10 minutes away and was a huge part of our family's lives. It was and still is very difficult.
So, in a nutshell, this year has not started out the way I had hoped for, but I am still holding out hope for some good to come this year.
On a positive note. My Doctor's, who do not work together as a team but individually, did make some changes to my meds and they do seem to be helping. Apparently when you have MS, then your Neurologist handles all issues. When you have Chron's then your Gastro handles all those issues. When you have Fibromyalgia, then your regular Doctor handles those issues. Kind of odd, since they are all Autoimmune diseases. So, I was able to get some help by adding a medication for the severe spasms, caused by the MS. As for the Fibro, I was able to get rid of 2 medications and add 1, and that seems to be working very well for me. And then with the Chron's, it did take 2 doctors but they have that going good for me now too. It does cause a lot of frustration when Doctor's don't work as a team.
I figured that I would take the time to update everyone on why I haven't posted in a while. I have a lot to write about, but for now, I will focus on the current situation(s). And then I will write about some actual informative topics that I have learned about in regards to Multiple Sclerosis and Living Day to Day with MS. You know, I guess that in some odd way this current blog does sort of sum up "Living Day to Day with MS".
