I was reading an article that said that the death expectancy this year in America could be as high as 90,000 Americans. That doesn't even include other countries. I don't know about you but that scares me. As I currently am laying in bed with body aches, chills, burning eyes and head pain. At this point it doesn't matter if you call it Swine Flu or H1N1. It was known too long before as the Swine flu and no matter how hard they try to change the name... I think it is to late.

Especially now with schools back in session and the weather changing I lay here thinking to myself... Am I at a higher risk for getting this? Will I be one of those 90,000 Americans that die from this. I have Multiple Sclerosis which is an autoimmune disease. I have 3 children in 3 different schools and I work with the public constantly.

I may not have the cleanest house. Hard to do with pets in the house... Kind of like tumbleweeds rolling across the floors now that the animals are shedding. But since being diagnosed with MS, I have become a severe bleacher and disinfectant type of person. I am constantly washing my hands, I quit biting my nails (which I have done for 33 years), I have disinfectant hand sanitizer in my purse and in my room and in my desk at work. I constantly am bleaching the counters and door knobs and phones and faucets. I have my own set of pens that I use so nobody else can touch them. With that said, think of all the things you touch in a day. Money, shopping cart, even the mail. How do you protect yourself from that?

And then there is the downfalls. I have 3 kids!!! They are goood about staying away from me when they are sick... But what Mom will stay away from their sick kids? I still haven't quit smoking and I have MS.

Most of you reading this are in the same predicament. So are you afraid? Are you taking precautions? Will you go get the flu shot and Swine Flu vaccine when it is available? Most people i know that get the flu shot end up with the flu. Odd isn't it? I don't see what the point is if I get the immunizations but my family doesn't. How does that make any sense?

I guess now that they have shocked the United States with this new announcement. I am desperately trying to figure out. How much more at risk are we? With MS does that make our chances even higher and if so how much higher? What more can we do to protect ourselves? How do we get our kids to protect themselves but also to assist with making it safer for us?
Sorry I haven't been on in a few days. I have been working a lot and getting ready for school to start. As I am sure most of you have been too.

As for Updates... I got the result back from the small intestine test and it came back normal. so of course they want to do the large intestine test. You all know what test that is... The Colonoscopy!! I am not so super happy about this test. Actually the best part was that the nurse said The Dr. was booked up til the end of September beginning of October. That part thrilled me. I have had this test recommended a few times over the years and to tell you the truth I am scared to death of this test. I don't know if it is the prepping part that scares me or the test itself I just get nervous even thinking about it. As I said before I knew that this test was most likely going to happen but of course I was praying that the answer would be found in the small intestine test. I am not sure what the deal is because the nurse called with the results yesterday and said that they would call right back to get this scheduled but then never called back and of course I wasn't going to remind them. With my luck I am going to find out that the Doctor is going to squeeze me in next week. Yet if it was anyone elses luck they would forget to call you back and get away another year without having it done. I know I need this to find out what is wrong and I do want to know and get it fixed but I wish I could just get it fixed without the test.

OH well, enough about the test. Other than that I have been working and of course this week was crazy busy and so the symptoms have been acting up like crazy.

That's all for the updates I guess. Except for I am now on facebook and twitter. I am learning both. The Twitter I use for MS related stuff also however, on Facebook I keep that fun and some about MS. I would love to have you as friends on Facebook. I put a tab on the side of this page to locate me on both. I am really loving some of the games... Farmville and Uno and Farkle so come join me and have some fun.

I have just put the New Poll Of The Week up and this week is going to be questions about the MS injections. I had a lot of people send in questions about them and so I am trying to sum them up in 4 questions. Hopefully they will answer most of the questions asked.

Please take part and I hope we have great turn out as usual. And a thank you from the fellow MS'ers for taking part in this weeks questions to help them understand more about the injections.

I want to thank everyone with your concern about my appointment yesterday. I went to the Specialist for the intestinal problems. He does agree that it is the Multiple Sclerosis causing the problems.

He explained it to me.. So I will pass this on to you.
Multiple Sclerosis affects the nervous system (that is all your nerves and how they work or in my case don't work). He said that the intestinal tract is run by many nerves. If the nerves are compromised they will not allow the intestines to work causing constipation or if they are being caused to overwork then you end up with diarrhea.

He said that he is going to start with a test on my small intestine. I go for that tomorrow. The down side is that I had to stop the Magnesium and now my stomach is SUPER bloated. I go for the test at 7:45 tomorrow morning. and then I can start the magnesium except my husband planned a bonfire for tomorrow so I might be in a little bit of trouble. Anyways is that test comes back ok. Then I need to have the wonderful Colonoscopy. He said he would do upper and lower. Reason for this is to see the colon but the upper is to see if the systemic yeast infection is completely gone.

He also explained about the yeast infection and it made much more sense then what the other Doctors said. He explained that obviously we MS'ers have a compromised immune system. The medications we take are immune suppressors and then to add the intestinal problems along with the flare up since January, that also has made my immune system even weaker and slower to respond to fixing what needs to be fixed. So to him it makes a lot of sense how the yeast infection would have happened. He also explained that anytime someone takes steroids that this type of infection can happen MS or Not. So keep that in mind when you have steroid treatments. I have not had steroid treatments since last October and I had a yeast infection immediately following in my mouth that my normal Doctors tried treating but the meds did not help. So this yeast infection has been there since last October. By doing the upper scoping he will be able to tell if the meds I took a few weeks ago was able to kill it all or just make it appear to have disappeared. If it is still there he said I could do one more treatment and that would be enough to kill the rest of it. The only way to know for sure is to do the scoping so he said he would do it all together.

He explained that if the colon is fine and if it is the MS doing this intestinal shut down, that I do have some other options other that feeding tube and the flushing tube. He said it would require surgery but would allow me to have a normal functioning intestines. By cutting out part of the small or large intestine depending on which one is being affected from the MS but leaving enough of the small/large intestine in tact would lessen the amount of intestines that food would have to flow through and still be able to have normal function without having to worry about a bag or tubes. As odd as it seems. I would rather have that surgery then have a tube or two in me and finally be able to have some normalcy in my life.

Now if they actually find something wrong with my intestines through all this testing then all this will change and we or I will have to deal with that and the options I have at that time. For now I am going to have faith in him and believe that most likely it is the MS and believe there is going to be a solution. If not I will deal with that then.

So tomorrow starts the testings and because I haven't been able to take the Magnesium capsules I am very uncomfortable and sick feeling. I will be glad when this test is over. When I come home I will hurry up and start those again and hopefully within a week of being back on those things will be back under control. For those of you wondering.. If the Magnesium capsules work... Why not just keep taking those? The answer is that the doctor said that the quantity of MG I am having to take every night just to have normal functioning is the same as drinking 1-2 bottles of Magnesium Citrate and that is ok for a temporary fix but not healthy to keep doing that long term. I will note that I was not having to take my baclofen barely at all for muscle spasms so ther is truth to what I have been talking about and what they claim about Magnesium. A normal amout is 250mg and if you keep that in mind I have been taking between 750-1500 mg a night.

I will keep you all posted on how this all goes and what more I learn as I go through this process.
Today, I came home from work and took my meds. As I was laying down waiting for them to kick in so I could get enough relief to take a nap. I started reading the newest edition of
"The Motivator" by MSAA (The Multiple Sclerosis Association of America) I found a lot of good useful information. Since I really don't have much to say about myself (I know...Shocking). I decided to write about useful information and links that you may find interesting or give some direction for you and your loved ones. Anything Highlighted is the link to the direct location of the topic.

The MSAA does have an extensive library and video library for you to use for free. It is quite interesting and a lot of good topics and subjects. This Library covers everything from a good description of MS, Symptoms and Research. It also covers Family changes and challenges. Disability and Leagal information as well as many other topics and discussions.

This subscription also has a section called the" Research Update" describing all the current Treatments for MS along with all the Experimental Drugs that they are currently working on along with Other Therapies they are studying. Interesting Info and answers to common questions about the treatments.

There is a section that is Labeled "Symptom Awareness" This section gives an overview of common symptoms and devices that may make life more suitable for you.

This was fun. I might do this more often with other resources. I hope you find it interesting as well. The "Poll of the Week" is coming very soon.

Oh and under the blog post. I have listed a few of my favorite links to places. I started a "Faces of MS" page on my website and would love for you to feel free to add your face to the wall.



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We are in the process of gathering information that will help us understand what needs to happen and what needs to change to help people affected by MS keep moving their lives forward. This data will help guide the Society’s direction for the next five years. Thank you for taking a few minutes to complete this confidential survey. Your input is invaluable.

http://www.nationalmssociety.org/about-the-society/strategic-response-survey/index.aspx
Continued from my blog posted earlier!!! You know... My short and sweet one

I think I found the answer...
It just happens that I came across this link.

http://10-ways-to-quit-smoking.xray5.com/difficult-cessation-for-women-research-more-finds-smoking-journal-times/


This is going to be short and sweet....

I know that seems impossible coming from me but here goes.

I am still in the Phase 1 of Tara's Quit Smoking Program. Phase 1 is thinking about quitting.

I have been on a roll and then last night happened.... I couldn't fall asleep. I was up til 3:40 this morning so of course I went way over my limit I set for myself which is 10-14 a day.

Every time I would light up a new one I would get mad at myself but continue to smoke it anyways. I even found myself bargaining with myself. You all know what I mean... OK Tara you can smoke another one but when you fall asleep and wake up you can only smoke 10 and under today.

I fell asleep at 3:40 and had to wake up at 7:00 this morning for my son's soccer game (They tied). Anyways on with my story... It is now noon and I think I have smoked 6 this morning and will never make it all day. So I am trying to bargain again.

However, a thought crossed my mind and here it is. Tara you already have been diagnosed with MS and have had thirty something years of bad luck... So maybe my luck is better and smoking really isn't going to cause more problems then I have already had in the past and live with daily???

I know some of you will be mad at my way of thinking and I know it is not the right way to think....But the thought did cross my mind.

Anyways! my point of this is that I know I am going to screw up again today and I don't understand why it has to be so hard to quit. I think I am a strong person in so many ways but I am so weak when it comes to quitting smoking.

That's all for now and I am sure this is going to cause a stir but thought I would pass along my thoughts for the day before I lay down and go to sleep.

I guess it wasn't so short after all!!! LOL

Well, the results are in from this last weeks "Polls of the Week" and here is what I learned.

I think the most interesting and depressing poll result is that 38% of the poll takers it took 10+ years to get a diagnosis. I am so sad to hear that and I am also angered that my fellow MS'ers had to wait that long, wondering day to day what was wrong with them, until they got the diagnosis. How horrible. I know MS can be hard to diagnose. However, I know how hard the 6 months were for me and I can't imagine how you felt waiting 10+ years or even 11% of you that had to wait 2+ years.

I don't think I was too surprised at the result of how many Neurologists we all had to go through to find one that either was able to diagnose the MS or found one that you felt comfortable working with. I think it is so important to have a Neurologist that you feel comfortable with because you have to be able to trust them with all of your treatments and basically your future rests in their hands. So I will also add my other input and that is... If you are not comfortable with the Neuro that you are working with find another one or don't feel uncomfortable asking for another opinion.

As for the biggest lifestyle change... Vitamins and Supplements wins the prize. I know that it has taken until last year before I started to turn towards Vitamins and Supplements. I have never been a pill popper or vitamin taker. However, just like all of you... The pill popping happens real quick with MS. I have some very good friends of mine that sell USANA and they paid for my entire family to use the vitamins and supplements. It is not new news to all of you that last year was a very rough year for us. Not only was I still really suffering with the MS being uncontrolable but my youngest son was also dx. with an extremely rare autoimmune disorder that attacked his skin. Long story. but within about a month my middle son was diagnosed with being Anemic and within a few weeks my oldest daughter was in a severe car accident. Anyways long story short. Our very good friends paid for our entire family to take the vitamins and supplements. We all saw drastic changes and improvements in all of us. I know how expensive the USANA is and as much as I appreciated it I felt horrible allowing them to continue buying them for us. We all stopped and some of the problems returned. We have now started to purchase vitamins and supplements at the GNC. Probably not as good as USANA but we are seeing improvements again. I have been keeping you posted on that. Of course right now I am struggling with having to change my diet and cutting down on smoking all at the same time. I do have my appointment this Thursday with the GI doctor and hopefully some problems might be relieved in the near future.

As for Accepting MS.... The poll showed most of us accept having Multiple Sclerosis SOME DAYS. I don't think that is abnormal at all. When you are doing good (which means at least what is a so called good day with MS) it is much easier to accept the disease. When we are having our very bad days or even just a bad day that makes us miss out on doing something we were looking forward to or keeps us stuck in bed. It is very hard to say that we ACCEPT what this disease does to us. This disease has control over us and that is very hard to accept.

I want to thank everyone for participating and I will be posting the new poll of the week in a few days. Still waiting for 1 or 2 more questions. So please feel free to give me a suggestion of something that you would like to know.

UPDATES..... Not much to update you on at the moment. Oh and for those of you wondering about how I am doing on my phases of quitting smoking. I have not picked a date but I have tried making it a point to cut down. I was at a pack a day and I have been staying between 10-14 a day. Of course I have had bad days but I just pick back up again the next day and start all over. I have the appointment on Thursday and will keep you posted on that.
I don't know if it is the weather or just me but the last 2 days I have been waking up with this numb sensation in my fingers. The thing is... It is not just Numb it feels as though they are swollen so big that the skin feels tight and is numb. However, if you look at my fingers they look normal. I had the same sensations the other day but in my ankles and feet. My leg pains have been unbearable. The "Rubberband" sensation I talked about a couple days ago. It has been very difficult to fall asleep. I end up staying up til 1 or 2 in the morning before I take enough medicines to fall asleep and then of course it is difficult to wake up in the morning.

I don't know what the issue is. I know it is the MS but I don't understand these weird sensations and feelings. Those are not normal. NORMAL for me is burning, prickling, and tenderness. Of course then I am still dealing with the swollen stomach due to the intestinal thing. I will say that the Magnesium capsules are helping some but my stomach is swollen as though I am 4 months pregnant. Thank God I am not pregnant. But it sure would make it easier to explain when people see me.

Anyways that is about all for now.

There is still about 2 hours left to vote on the polls for this week. I was hoping to get at least 30 but I think we are at 23 and that is good for me. Thank you all for taking the time to take part in this weeks polls. I will be putting in the new polls in a few days.

There are 6 hours left in the Poll of the week. We have 22 voters and I am really hoping to see 30 by the time this ends. The more people that vote the more accurate the polls are for Fellow MS'ers. Please help us reach our goal!!!
Remember to click vote after each question or it doesn't save the answers

Thank You!!!
I posted this a very long time ago but after reading many blogs from Fellow MS'ers I decided to repost this. I love this!!!
I did not write this but it is a great explanation.

When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below---


What You Can do To Understand Painful Heavy Legs... Apply tightly 20 lb ankle weights and 15 lb thigh weights then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now?

Painful Feet... Put equal or unequal amounts of small pebbles in each shoe then take a walk.

Loss of Feeling in Hands and/or Arms... Put on extra thick gloves and a heavy coat then try and pick up a pencil, if successful, stab yourself in the arm.

Loss of Feeling in Feet and/or Legs... Ask a doc for a shot of novocaine in both of your legs and then try and stand up and walk.

TN (Trigeminal Neuralgia). ..Take an ice pick and jam it into your ear or cheek whenever the wind blows on it, or a stray hair touches it. If you want something easier to do, get someone to punch you in the jaw, preferably daily.

Uncontrollable Itching... Glue or sew small steel wool pads to the inside of your shirt, pants and undergarments wear them for an entire day.

Tingling... Stick your finger in an electrical socket - preferably wet.

Tight Banded Feeling... Put 12 inch wide belt around you and make is as tight as you can and leave it there for the entire day.

Shots... Fill one of our spare needles with saline solution and give yourself a shot every time we do our shot.

Side Effects From the Shot... Bang your head against a wall, wrap yourself in a heating pad, wrap your entire body with an ace bandage tightly then finally treat yourself to some spoiled food or drink.

Trouble Lifting Arms... Apply 20 LB wrist weights and try and reach for something on the highest shelf in your house.

Spasticity... Hook bungee cords to your rear belt loops and rear pant leg cuffs then for your arms hook bungee cords to your shirt collar and cuffs on shirt sleeves then go dancing.

Poor Hearing/Buzzing in Ears...Put a bee in each ear and then put a plug in each one...bzzzzzzzzzzzzzzzzzz

Balance and Walking Problems... Drink 100 proof grain alcohol and then sit and spin in an office chair for 30 minutes, now try and walk.

Urgently Needing to Pee... We put a .5 liter remote controlled water bag and drip tube in your pants, we point out 2 restrooms in a crowded mall, then we tell you that you have 30 seconds before we activate the water bag (by remote control) to get to a restroom. Just for spite we may make that 20 seconds without telling you.

Bizarre and Inexplicable Sensations... Place tiny spiders on your legs or arms and allow them to periodically crawl around throughout the day.

Pins and Needles... Stab yourself repeatedly with needles all over your body or better yet....Get a large tattoo.

Dizziness (Vertigo)... Get on a gently rocking boat all day and all night and take several walks around the deck.

Fatigue... Stay awake for two full days to induce incredible fatigue and then cook dinner, clean the house, walk the dog and see how you feel.

Bowel Problems... Take a 4 day dose of an anti-diarrhea medicine followed directly by a 3 day dose of stool softeners for a minimum of 3 weeks, at the end of 3 weeks sit down on a hard uncushioned chair and stay there till tears appeared.

Burning Feeling... Make a full pot of boiling water and then have someone fill a squirt gun with the boiling water and shoot it at yourself all day long. However, you can give us the pleasure of shooting you instead...optional of course.

Intention Tremor... Hook your body to some type of vibrating machine try and move your legs and arms.....hmmm are you feeling a little shaky?

Buzzing Feeling When Bending Our Heads to Our Chest (L'Hermitte's)... Place an electrical wire on your back and run it all the way down to your feet, then pour water on it and plug it in.

Vision Problems (Optic Neuritis)... Smear vaseline on glasses and then wear them to read the newspaper.

Memory Issues... Have someone make a list of items to shop for and when you come back that person adds two things to the list and then they ask why you didn't get them. When you come back from shopping again they take the list and erase three things and ask why you bought those things.

Foot Drop... Wear one swim fin and take about a 1/2 mile walk.

Depression... Take a trip to the animal shelter everyday and see all the lonely animals with no home. You get attached to one of the animals and when you come back the next day you come in while they are putting her/him asleep.

Fear... Dream that you have lost complete feeling in your feet and when you wake up wiggle your feet, just so happens they don't move. Think about this every night wondering whether something on your body won't work the next day.

Swallowing... Try swallowing the hottest chili pepper you can find.

Heat Intolerance or Feeling Hot When it's Really Not... You are on a nice vacation to Alaska. It's 35° outside and 65° inside. Light a fire for the fireplace and then get into it. Once you have reached about 110° tell me how you feel, even a person without MS would feel bad, now add all of the above symptoms - welcome to our world.

And Finally... After subjecting yourself to the items above, let everyone tell you that you are just under a lot of stress, it's all in your head and that some exercise and counseling is the answer.

(Please note that I didn't write this and don't know who did)


I haven't written any posts lately due to the fact that I have been going crazy trying to purchase all the kids back to school supplies. I love the lists we are given each year. There is always at least 1 item on each of the kids lists that makes you go on a wild goose chase to find it. You know what I am talking about. It could be a special kind of calculator, or a one of a kind color notebook, or even a red pen that are all bought up and nobody carries it at the moment. You go running from town to town to all the different stores and finally you find that one stupid 10cent item and you end up paying 8 dollars for just because you want to stop looking. This year we were on the wild chase for a purple folder and non-perforated notebooks. Just for fun the next time you are at the store see how long it takes you to find those items. And the moment you find it.... Somebody bumrushes you and snatches it up before you get it into your cart.

UPDATES!

The heat has been horrible and of course the burning and prickling is going nuts and so is the leg pains. Not the normal ones it has been this hot, numb, burning and tingling pains from the middle of the thigh to the middle of the calf. You can walk but the middle of the legs feel like rubberbands that are burning you. It is a weird, annoying, and frustrating sensation. I have been working and it has been busy but the minute I get home I lay down, for what normally would be an 1.5 - 2 hour nap, and is now lasting 4-5 hours.

Magnesium and Muscle Spams - I switched to the Magnesium capsules from GNC. They are 400 mg each. I switched because the powdered tablets were difficult for me to swallow. Ihave noticed that if I faithfully take the Magnesium every day my muscle spasms and twitches are reduced considerably. I even went a week without needing my Baclofen 3 times a day. I dropped to 1 time a day. I also had dropped my Lyrica from 3 times a day to 1 -2 times. Now this last week of course as you learned from my post about a week ago. My hormones were at the peak due to my menstrual cycle and I needed more but I am coming to an end so we wil see if things go back to not needing the meds as often. And for those of you with the intestinal problems - The Magnesium capsules are helping with that also. Not perfect but helping. Of course I have my appointment with the specialist next Thursday and we will see what he has to say.

Polls- Just a reminder that thee is only 1 day left to vote on the polls for this week. I am also looking for new poll ideas. I have a couple that have been given to me but am looking for at least 2 more but always looking for future weeks. I know you must have questions you are curious about when it comes to MS. Throw those ideas this way and see how your Fellow MS'ers handle or deal with that issue.
Just a reminder!!!

There are only 2 days left to vote on this weeks "Polls of the week" If you haven't taken part please do.

Also I am looking for feedback from everyone about issues they would like me to add to next weeks Polls of the week. Any questions you might have regarding Multiple Sclerosis or are interested in learning more about. Please send those ideas to me.

Thank You for making this such a success!!!
I was on a website that I have found to be very helpful. I found this article and related articles regarding what Multiple Sclerosis is along with other answers to common questions. I just thought I would pass this link and information along to everyone else.

Also.. Just a reminder to take part in the current poll of the week. Only a few days left.

Multiple Sclerosis (MS)-Topic Overview
Alright, I have just posted the new Poll of the week!

I have to thank everyone for all the participation in last weeks polls. I thought it was very interesting. I also want to thank you for giving me questions to ask for this weeks Polls Of the Week!!

I think it is great that everyone is starting to participate and telling me questions that they particularly would like to know.

I apologize for the past polls not being more open to my fellow MS'ers in other countries. I read through these questions for this week and as far as I can tell they are to the point and should be able to be answered by everyone. If not please let me know and I will try to make changes.

I have to say that the ONE question from last weeks poll that really was a shocker is that 77% believe there won't be a cure for MS in the next 10 years.

Thank you again for keeping these polls going and I can tell you from e-mails and comments I receive. These Polls are helping a lot of people not only with MS but there loved ones to understand more what we go through. Please feel free to send me any suggestions you may have for next weeks polls.
I don't know what it is about hormones and my MS symptoms. Sort of like when I was younger, I would have horrible PMS symptoms. As I got older they sort of went away. But I have noticed over the last few years that my MS symptoms really start to act up. A lot of times I have to look at the calendar to determine if I am having an exacerbation/Flare up or if it is my hormones. 9 out of 10 times it is the hormones. At first when I was just diagnosed I kept having this happen and Finally I had called the Neuro and said I have had 3 flare ups in the last three months but they tend to come and go. I am currently having another one. He replied maybe we should try the steroids and see if it doesn't get you back under control.

Well, 35 pounds later and going through steroid withdrawal,my monthly visitor would show up and the symptoms went away. So I started tracking the symptoms. I have regular daily MS symptoms and then 1 week a month I have extreme symptoms but I know now not to call the Dr. I know if I can just wait it out. My monthly visitor will come and symptoms will go away again.

Why is that? Does anyone else go through that?

I actually set the calender on my phone to alert me a week ahead to remind or prepare that the symptoms should be showing up soon.

I know that men don't necessarily have the same monthly visitor but do men have the same issues. For instance do their hormone levels increase every month also? And does it bring on symptoms for them to?
If only Doctors would communicate then these past 2 days would have been much easier.
I don't even really know where to start. So here goes....

A week and a half ago I had my appointment from hell

Last Wednesday I went to Urgent care Doctor about my throat - told it was a yeast infection in my throat. I asked how this could happen due to the fact that I hadn't been on steroids or antibiotics? He asked if I use a lot of Mouth wash and I responded yes. He said that mouthwash kills good and bad bacteria and since I already have bowel problems. I need those good bacteria more than ever. - OK, Makes sense.

Sunday I got a call from Urgent Care (I saw them 4 days earlier). She told me the x-ray of my heart showed it was enlarged and to follow up with my Primary Doctor on Monday. - What?????

Monday I wake up and get ready for work. Before going to work I call my Primary Dr. as soon as they open. I asked about my heart and the Nurse says it was NORMAL I said how can that be and why would the Urgent Care Nurse tell me this??? She responds, "I don't know but your Primary Care Doctor wants you to have an HIV Test?" WHAT???Why would she want that??? I have been married for 16 years and have never done anything outside of our marriage???? Does the Doctor know this???

I called the Nero and Urgent care doctor looking for any understanding. My Neuro called back first and said that since I haven't been on steroids and also because most of all of the shots we take are immunosuppressants. Copaxone would not be strong enough for this to happen. She proceeded to say that your primary care doctor is just trying to rule out any other reasons. So, of course I was even more nervous and upset. I Looked online and found a lot about this infection being related to HIV. But I also found one that showed a correlation between yeast infections and Systemic Yeast Infection (An infection basically caused by the bacteria in the bowels). So I called and told the nurse to ask the doctor about that and so I wait for a phone call... and NOTHING!!! I sleep on and off all night long scared to death.

Tuesday morning I finally get a response from the Urgent Care Doctor. I asked him Why did you not act alarmed by the infection but yet my Dr is instantly telling me to go have an HIV test. His answer was... First off you have MS and a suppressed immune system to start with, Your breath smelled of mouthwash and I know already that mouth wash kills the good bacteria along with the bad, and you had already told me that you take probiotics because of the bowel problem. Which was very backed up when you came to visit me. MY reaction was "Oh?" Then he said Remember me asking if you use a lot of mouthwash? and I said well, I use the bleaching pre-brush mouthwash then I brush my teeth and then follow up with Listerine in the morning and at night I brush and use Listerine. And then he said there is your answers why I didn't think anything more. I said why didn't my Doctor know this??

So I e-mail a letter to my doctor, who works and is in the same computer system, as the Urgent Care Doctor, and said what he said.

by 8:15 A.M. My Doctor's nurse calls and says your Dr. has canceled the HIV test and agrees with the Urgent Care Dr. So go make an appointment with the Gastro Doctor and then in 2-3 months we need you to repeat you X-Ray of the heart. I asked why now?? And the nurse says well, your heart was mildly enlarged so we want to have that checked out again"

Can you believe this???
So apparently my "Appointment from Hell" Just continues... I get a phone call this afternoon from Urgent Care. I was sleeping due to extreme fatigue. So I called when I woke up and I was expecting them to just do a follow up and instead tells me that from the X-Ray The cardiologist took apparently 4 days to look at it and then the Nurse says your x-ray was compared to past x-rays and your heart is enlarged. "What does that mean?" Well just call your primary Doctor and she will want to have further tests done. Have A great Day.


So the Question of the day is....
Does anyone have an enlarged heart? And if so is it from the MS? My blood pressure has always been low. Is it anything I need to seriously be worried about or just one of those things and don't worry about it.

And the problem is I decided to stop smoking all day today to give my throat time to heal but also cuz it burns like hell but now I really am wanting one.
Where ever do I start?

UPDATE #1 Lisa you either are a mind reader or you have some insight as to how this happened. You posted a comment as to my throat problems and asked if it could be a yeast infection... I quickly responded NO WAY! I sat in agony all week and finally went into Urgent Care because I could not deal with it anymore. I have been so tired and not able to swallow which in return means no food. Well, within about 1 minute the doctor said yep it's a yeast infection and it is going all the way down through the esophagus. I asked how this could happen since I don't have a yeast infection and I am a germ a phob constantly washing my hands. And he responded that the Copaxone is an Immune Suppressor and it can cause a yeast infection. So my question is Linda, How or what would have made you guess that? I am still fighting it and some days it feels better and then the next day it is worse.

Update #2 My kids left Wednesday and are enjoying there vacation with Grandpa and Grandma. I have missed them but have felt so horrible that I am glad they have been gone so I can try to recoup.

Update #3 I have been taking the magnesium 250mg and I have noticed that my serious muscle spasms have dwindled down. So I am doing a test... Yesterday I had no muscle spasms so I did not need any baclofen. I usually take 3 tablets 3 times a day at 10 mg each. Granted I have been on the magnesium pills now about a week and a half. Today is still going strong and at this point no muscle spasms. Yes nerve pain that I take clonazapam and Lyrica but the spasms have really calmed down. I will keep you all posted as to how that goes.

Update #4 We are having a GREAT turn out on the Polls Of The Week and at the same time I/We have learned a lot about the different treatments and different subsidies and plans that are throughout the world. I really appreciate all the input and it has been very informative.

That is all for now. My bed is calling me to take my nap.

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