
Heightened Sensativity and MS Exacerbation!!!
It is Monday Morning and I am feeling worse today than I did yesterday. I was laying in bed trying to sleep and I am prickling everywhere. My whole hands and feet and legs and I feel like someone is touching me with a curling iron on my back, shoulders and arms.
Usually I wake up in the morning after a bad day and I feel great and as the day goes on then symptoms come on and progress. Today is the first time in a long time that I have woken up in the morning feeling horrible and scared to see how much worse the day is going to get. If it progresses worse I will be in real bad trouble. I already can't have anything touching me. My clothes hurt, my blankets hurt and worse yet even the wind from the fan is even hurting me.
I have come to the conclusion that it's not just burning and prickling it is what I will refer to from this point on as "HEIGHTENED SENSATIVITY" .
I looked at the weather channel hoping to see the weather getting back to better temperatures and instead I saw that we will be in the middle 90's for the majority of the week.
I know know to have the ice packs ready. At work it is very hot and we don't have air conditioning. When the garage doors are open we get a good breeze if there is wind but this week is going to be horrible. so I am trying to think of how to use my ice packs at work without looking ridiculous to the customers.
For anyone that is new to MS...
Ice packs help to keep your body temperature down. When your temperature rises even a degree it can bring on MS symptoms. It can feel like you are beginning an exacerbation but it is called "Pseudoexacerbation" (According to the technical term. In my words it is called a fake MS attack. Usually once your body temperature drops back down the symptoms tend to subside either all the way or at least a lot more then they were. Ice packs work!!! Always keep some in the freezer or in a cooler if you are going to be out in about. The neck, wrists, back and legs are great places to place them. I have even found one place better (at least for the women....) Place a small Ice pack in your bra either in the cleavage or under the breats. I usually don't put a honking huge ice pack there but you can use some other things. I have paper towels, wet them down fold so they are small and flat, Keep in freezer and they will fit perfectly. Or you can use frozen peas in a ziplock bag. There is also another one... You can order or request for free from the MS Society free "Under Boob" coolers. Now is the time to request this. The MS Society has a program for free for MS'ers that you can choose 3 types of cooling products from a list and they will send them to you free. It is a great program but it is only until supplies are gone.


5 comments:
Under Boob Cooling Devices! I will have to research this...That would be a perfect addition to the cooling collar that I've been wearing and love! I am sorry to hear of your heightened sensitivity and overall symptom uproar. I hope it resolves soon for you.
Some great tips for surviving the heat, it can be overwhelming. Hope you get better.
Kim
These are great ideas to combat the heat! It's officially getting hot where I live and I need all the help I can get.
I just started my own MS blog and would love for you to check it out:
http://danielle-english.blogspot.com/
Tara,
I hope you get to feeling better soon. This weather is so awful. I do all that I can to stay out of the heat.
Thanks for the tips too.
I hope it's a quick detour, then back to good times. I may need to start wearing a bra so I stuff it with frozen peas!
Andy
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